Two years ago I wrote a set of posts called “A User’s Guide to PTSD.” They attracted a lot of attention, and several people friended this LJ in the hope that I would write more in the same vein. I pointed out that I write about mental illness approximately once every two years, so it could be a long wait. If any of them are still reading, I hope they enjoy this follow-up. If you missed the first set, I've linked them below.

Part I: What I Did In The War. (Introduction; background; what happens during trauma; what happened to me.)

Part II: What Does A Flashback Feel Like? (My history with PTSD, what it felt like to me, and dealing with other people who have it.)

Part III: I Don't Have To Do That Any More. (On recovery; lingering effects; book, film, and TV recommendations.)

I recently underwent training to join a team which counsels people in crisis situations. A crisis situation could be finding the body of a loved one who died of natural causes. It could be witnessing a car crash. It could be surviving a brutal mass murder. (All calls are absolutely confidential, so while I discuss the training a bit below, you will never hear any counseling anecdotes on this blog.) Since the team is run by psychiatrists, they’re very concerned with the psychological effects on the volunteers. During the training, I and the other prospective team members were repeatedly asked to consider what triggers we might have and what situations we might find especially disturbing, so we’d either be able to prepare ourselves or bow out of situations involving those triggers.

Since I was abused as a child, had a family member murdered in a domestic violence situation, had other family members die slowly and painfully of natural causes, was in a serious car accident, and have done several suicide interventions not to mention attempting suicide myself, I was confounded by the idea of avoiding crisis situations with possible triggers. What crisis situation wouldn’t have one?

“I think I’d be upset by dead children,” I hazarded. “That’s one I haven’t encountered yet.”

Statistically speaking, a prior history of PTSD puts you at risk of recurrence should you again be exposed to trauma. We are not strong at the broken places. The broken places remain fragile. We build up our strength around them to compensate. If we’re lucky, that’s sufficient.

I do not expect to have any kind of catastrophic meltdown. If I did, I wouldn’t have volunteered. I do expect that, if I come across a particularly disturbing situation, it will exact some sort of price – some sleepless nights, some nightmares, some hyper-vigilance – the sort of thing I’m subject to anyway if there’s a lot of stress in my life. Basically, the same sort of thing the counselors are subject to regardless of personal history, should they encounter something sufficiently unsettling.

One can’t avoid all stress, but it’s easy to avoid work which puts you into direct contact with other people’s traumas. But avoiding it also exacts a price. I sometimes get a feeling as if a fire alarm went off in my head, a sudden sense of urgency and the conviction that something terrible is happening somewhere and I ought to be doing something about it. This sense can keep going at a low level for weeks on end, periodically startling me with an especially intrusive feeling that I should go! Go now! Run!

I used to identify this as a peculiarly specific anxiety attack, though what it really feels like is the world's most useless psychic power. I cope mostly by consciously acknowledging it for what it is - a habitual firing of neurons that were overused for too many years, and never got used to peace. It's not meaningful. It's annoying background noise. It doesn't mean I have to actually do anything, though if it gets especially "loud" stocking up on earthquake supplies or activities of that nature sometimes helps.

But in fact, terrible things really are happening somewhere at any given time, and I really ought to be doing something about them. I don’t expect that being a volunteer crisis counselor will make the alarm turn itself off permanently. But at least I will be doing something.

(I could elaborate, but I had to write three separate essays over the course of ten weeks on “Why I Want to Join the Crisis Response Team (please detail your strengths and weaknesses,)” and I’m a bit sick of the subject. No, I didn’t say anything about fire alarms in my head. I figure that sort of thing can wait till they know I’m not a raving axe maniac me a bit better. Though I think that if most and maybe all people were to disclose absolutely everything that goes on in their heads, they'd all sound at least as strange as I do.)

A year ago I was involved in several (unrelated) extremely stressful situations. I would lie awake at night thinking, “What if right now [something terrible] is happening?” I should note that this wasn’t my internal fire alarm. There really was a reasonable chance that [terrible thing] might, in fact, be happening at any given moment. That being said, my insomniac obsessing was helping neither the situation nor me. I wanted to see a therapist, but my insurance only covers therapy in cases of “major mental illness” as defined by the insurance company.

I went to a psychiatrist and asked for a diagnosis, only to be informed that in her opinion, I was under a lot of stress and would benefit from therapy, but did not have a mental illness, major or otherwise. “Actually, especially given your history with mental illness and what’s going on in your life right now, I think you’re pretty emotionally healthy.”

You can probably imagine my mixed feelings about that statement. (When I explained the situation with my insurance, she kindly wrote down for their behalf that I met the DSM-IV criteria for an adjustment disorder. “Technically speaking,” she added to me. An adjustment disorder is psychiatrist-speak for “temporarily unhinged by the sort of stressors that occur under normal life circumstances (death of a loved one, job loss, divorce, etc), as opposed to the extraordinary stressors that can cause PTSD (rape, combat, natural disaster, etc).” And yes, the therapy was very helpful. I'm now much better at walking away, letting go, and otherwise not pouring all of myself into a futile attempt to fix someone else's life.)

It wasn’t only that, after so many years of trying to fix my mental illness, the fact that I had largely succeeded was now preventing me from getting needed mental health care. It was also that PTSD, even before I knew what it was, had shaped so much of my identity that I felt strange without it, or even contemplating the idea of being without it. And yet she was only telling me what I already knew. It was as if, after many years of debating with myself over whether I was willing to lay down my armor and weapons in order to get out of the war zone, I found that I had already dropped them. And that I’d known I had, but rather than either pick them up or kick some more mud over them, I’d taken mental note of where they lay, just in case, and tried not to think too much about the lack of weight at my belt and back.

I thought of finding a different metaphor, because PTSD is not actually helpful protective armor but rather a set of massively counterproductive and painful reflexes that can feel like they’re all that stands between you and your own destruction. I also realize that my choice of imagery does not exactly shout out “emotional health.” But the metaphor I used is the one which feels true.

I can sleep through the night. I can eat without having to consciously make myself swallow each bite. I can let people touch me. I can walk down a busy street without flinching. I can sit with my back to a window or door. I can sleep while people walk into my room, if I know in advance that they might. I can let people walk up behind me and not turn around. I do notice when people walk up behind me. I guess I kept a pocket knife.

This is not PTSD as defined by psychiatrists and as recorded by history. I no longer meet a single one of the criteria. By that standard, I don’t have that illness any more. What I have now, technically speaking, is a sub-clinical set of reflexes, attitudes, and sensitive areas that were shaped by the experience of having PTSD.

(By the way, it’s still totally fine to say, “Rachel has PTSD.” I’m not particularly attached to the DSM-IV criteria, nor to the concept of having it now vs. having had it in the past.)

To return to the crisis counseling, I’ve considered the possibility that I’m attracted to it because it offers me the chance or excuse to pick my weapons back up, so to speak. But I don’t want to automatically assume that my subconscious is trying to kill me. Sometimes it’s best to operate under the assumption that your instincts are sound. That nothing bad is happening right now. That you’re not in denial. That, however unlikely it may seem, you really are all right.

Any sort of crisis-related field draws people who have been shaped by trauma. Those fields also draw people who haven’t, but are there for other reasons. I know why I’m there – and that it’s fine that that’s why, but it doesn’t make me a better counselor, let alone a better or cooler or stronger or more compassionate person, than those other guys. It’s just the road I happened to drive in on.

Like my first set of posts, this one is intended solely to reflect my own experience, not anyone else’s. That being said, having gone through all of this, I’ve learned some things:

That trauma is influential, but doesn’t define us or our lives or our choices.

That trauma isn’t what makes us special or interesting or ourselves, though how we choose to deal with it may be one of the things that does.

That we all live with our own private battles and own private pain, even those of us who don't have horrific stories to tell.

That ongoing pain and struggle doesn't mean we're not leading quite happy lives anyway.

That we can get much, much better.

That it isn’t our fault if we haven’t yet.

That change is possible, always, at any time, regardless of what we’ve done or haven’t done or for how long.

That it isn’t hopeless unless we’re already dead.

And that, courtesy of one of our more entertaining training sessions, you’re not dead till the coroner says you’re dead.
This is Part III of a three-part essay on Post-Traumatic Stress Disorder: understanding it, having it, writing it.

Part I: What I Did In The War. (Introduction; background; what happens during trauma; what happened to me.)

Part II: What Does A Flashback Feel Like? (My history with PTSD, what it felt like to me, and dealing with other people who have it.)

Part III: I Don't Have To Do That Any More. (On recovery; lingering effects; book, film, and TV recommendations.)

ETA: Several years later, I added Part IV: Postscript.

After all that, I have never been either formally diagnosed with or treated for PTSD.

Unusual Circumstances May Cause Unusual Problems )

Recovery: Traditional Methods )

Recovery: Non-traditional Methods )

Don't fall in love with your own beautiful suffering. )

Recommended Media: Nonfiction )

Recommended Media: Fiction, TV, and Movies )

I hope this was helpful, useful, or enlightening. It was hard to write, and not just because of its extreme length. Some of it was stuff I've never told anybody before. There was even a point when I considered not posting it at all.

I was tremendously pleased and flattered when so many of you, when nominating the anime character I most resemble, thought that sanity and stability were among my most notable traits. I briefly had the woeful thought that after writing a three-part essay detailing my suicide attempts and blackouts and flashbacks and sleeping with a weapon in my hand and so forth, if I ever asked that question again, you would all say, "You are crazy suicidal teenage terrorist Heero Yuy from Gundam Wing!"

On the other hand, most of that craziness is in the past. Regarding what remains, I believe that while I may have more total crazy than the average person, I am also much better than average at dealing with and controlling it. Not to mention the advantage I gain from not pretending that I have no crazy. In equation form:

More crazy + more anti-crazy skills - denial = less insanity.

Less crazy + fewer anti-crazy skills + denial = more insanity.

Or so I hope. Actually, so I believe, considering that the total amount of time I spent considering not posting this was approximately thirty seconds. Surely Heero would have deleted the entire series without posting, in the unlikely event that he had the self-awareness to compose it in the first place.

As always, please feel free to link, ask questions, comment, share your own experiences, correct my science and statistics, or recommend media on the subject. And anyone is always free to friend this LJ. (Though I mostly write about manga, anime, and books, not mental health issues.)

ETA: I do still read and am grateful to receive comments on these posts, even many years later. I can't guarantee to respond to every one because it can be a bit overwhelming, but I do read them.
This is Part II of a three-part essay on Post-Traumatic Stress Disorder: understanding it, having it, writing it.

Part I: What I Did In The War. (Introduction; background; what happens during trauma; what happened to me.)

Part II: What Does A Flashback Feel Like? (My history with PTSD, what it felt like to me, and dealing with other people who have it.)

I Don't Have To Do This Any More. (On recovery; lingering effects; book, film, TV, and music recommendations.)

ETA: Several years later, I added Part IV: Postscript.

It is generally a bad sign when you lose six months of your life. )

You don't have to eat the eggplant. )

If you have PTSD, odds are good that it is not your only problem. )

Attempting suicide via sleep-deprivation will make you even crazier than you were when you got the crazy idea to try it. )

What does a flashback feel like? )

Don't go to sleep with a gun in your hand. )

NEVER EVER hug a stranger from behind. )

Or shake a sleeping soldier. )

At this point, you may be wondering how in the world I was managing to lead anything remotely resembling a normal life. Writing this essay, I wonder the same thing. And yet I did get an undergraduate degree, then a graduate degree, have friends, and hold various jobs, all of which I managed to perform with at least some degree of competency.

But, remember that I didn't have all the symptoms all at once. They come and go. I wasn't diving under desks 24-7, just if my level of overall stress, my level of symptomaticness (is that a word?), and outside triggers combined to produce a visible reaction. And even then, a lot of what was going on was not visible to others, because I was highly invested in and skilled at putting up a front of normalcy.

It’s absolutely possible to be completely disabled by PTSD, but it’s also possible to have fairly severe symptoms and still hold down a job and seem more-or-less normal to a cursory inspection. This will be affected by a lot of factors, such as how much money you have and so how much it will affect your life overall if you forget to pay a bill or miss a few days of work, whether you hold a job which requires a lot of concentration and skill to achieve even minimal competency (like brain surgery) or one with more room for error, how invested you are in keeping up appearances, whether and so forth. This is similar to depression, anorexia, or alcoholism: some people hit bottom fairly quickly, and some people never really do.

In literary terms, I’d be surprised if a person’s work life is entirely unaffected, but I’d buy that they could continue working with reasonable or even excellent competence. However, some area of their life is bound to be falling apart, because that’s the nature of the beast. Typically even if your work isn’t much affected, your social, love, or creative life is. Or any variant on that.

Feel free to link, ask questions, comment, share your own experiences, correct my science and statistics, or recommend media on the subject. Also, anyone is always welcome to friend this LJ.

ETA: I do still read and am grateful to receive comments on these posts, even many years later. I can't guarantee to respond to every one because it can be a bit overwhelming, but I do read them.
This is Part I of a three-part essay on post-traumatic stress disorder: understanding it, having it, writing it.

Part I: What I Did In The War. (Introduction; background; what happens during trauma; what happened to me.)

Part II: What Does A Flashback Feel Like? (My history with PTSD, and what it felt like to me.)

Part III: I Don't Have To Do This Any More. (On recovery; lingering effects; book, film, TV, and music recommendations.)

ETA: Several years later, I added Part IV: Postscript.

You probably all know what PTSD is, in general terms: a mental illness resulting from trauma, often occurring in combat veterans but not limited to them, best-known for causing flashbacks, nightmares, and acute anxiety states. But people who have it often don't realize what's going on or don't seek help, and much of the fiction which deals with it reads as if the authors referred to a checklist of symptoms rather than finding sources from the point of view of someone who actually has it.

That would be my point of view.

Have you ever wondered what it feels like to have a flashback? I can tell you. (It does not typically involve acting out the entire trauma in real time, complete with dialogue and screaming. Vomiting is also not essential, nor even, as far as I know, likely.)

Also, the method I used to recover, more or less, and one of the issues I'm dealing with now, are both things which I have literally never seen addressed anywhere. I shall be very curious to hear if anyone else has had similar experiences.

I'm not a psychologist, and so can only speak from my own idiosyncratic perspective, plus a bit of research and discussion. But if you’re writing a story about someone who has cancer or know someone who does, it’s fine to look up cancer on Wikipedia, but you’ll learn more by going on to talk to a person who’s doing chemotherapy right now. And if you've ever done any interviewing, you know that the shortest route to an interesting response is "What did it feel like?" So I will tell you how it feels: how it feels to me.

Keeping that in mind, I mean this as a public service announcement— if nothing else, I hope that it will improve the depiction of PTSD in fiction, fan- and otherwise, for my own reading enjoyment, and reduce the incidence of gratuitous vomiting— so feel free to link far and wide.

Here's the DSM-IV criteria for PTSD. The DSM-IV is the American manual on diagnosing mental illness. I don’t think it's the be-all and end-all of existence, but it’s more familiar to me than other countries’ criteria, so that's what I'm using.

You don't have to have been in a war. )

Two people, same trauma; why only one case of PTSD? )

How I got into this mess-- skip to the next cut if you've read my book, know me well, or have been on my friends list for a while. )

What I did at the time, and some theory on how that relates to what happened later. )

This is trauma: You are walking along the path you always take, when suddenly the ground cracks under your feet like rotten ice, and you fall. You're shocked and terrified and you think you're going to die. Then you slam into the bottom. Maybe you break some bones, maybe you're just shook up and bruised.

This is normal recovery: You climb out of the pit. You go to a hospital. Depending on the extent of your injuries, recovery may be long or short, but after some length of time, the casts come off and you get on with your life. Maybe you're a little more cautious about where you put your feet, but it doesn't interfere with your life.

This is PTSD: You break bones at the bottom of the pit. You move to get out, and the bottom of the pit crumbles just like the path did, and you're falling again, stuck in that same moment of terror and shock and pain. And you keep on falling, and you will fall forever unless you grab a rope.

Grab that rope.


Feel free to ask questions, comment, share your own experiences, correct my science and statistics, or recommend media on the subject.

I am a fan and I read and write fic, so I will not feel in the least that you are being voyeuristic or trivializing if you want to ask me a question about how to make your Spooks/MI-5 or Magneto/Professor X or 3x4 story more realistic. In fact, I would probably request that you send me the link when you're done.

ETA: I do still read and am grateful to receive comments on these posts, even many years later. I can't guarantee to respond to every one because it can be a bit overwhelming, but I do read them.
.

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